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CBPR Toolkits, Guides, Manuals, Handbooks and Other Resources

READ THIS BEFORE YOU START:  Tri-Council Policy Statement: Ethical Conduct of Research Involving Humans (2014) Chapter 9 provides guidance for research involving Canadian Aboriginal people and for CBPRThis edition, which replaces the original TCPS, draws on advice provided by working groups and committees as well as the research community.

TOOLKITS

Community-Based Research Toolkit: Resources and Tools for Doing Research with Community for Social Change:  The tools, templates and resources in this toolkit were compiled and developed by the CBR team at Access Alliance based on half a decade of implementing CBR projects.  This toolkit also contains ethical scenarios for consideration.  

Pacific Aids Network: CBR toolkit:  This online CBR toolkit consists of resources to help with the various stages of community-based research.

Building Research Partnerships with Community Health Centers: A Toolkit for Academics: This toolkit is meant to provide researchers with the information they need to understand how the health centre model can support their research initiatives.

Research Toolkit, A toolkit for health research in partnership with practices and communities:  Whether you are just getting started, or have been active in research for a while, this site has tools and guidance for all aspects of a research project.  This web site is organized by phase of research.

GUIDES/MANUALS

HIV CBR Ethics Fact Sheet Series: A comprehensive resource of 10 evidence-based fact sheets identifying key ethical considerations when designing HIV CBR projects

Community-based participatory research:  a guide to ethical principles and practice: A helpful guide produced by the Centre for Social Justice and Community

Negotiating Research Relationships with Inuit Communities, a Guide for Researchers:  This guide is intended to provide practical advice to assist researchers who plan to work with, or in the vicinity of, Canadian Inuit communities in the regions of Nunatsiavut (Labrador), Nunavik (northern Québec), Nunavut, and the Inuvialuit Settlement Region of the Northwest Territories (NWT).

Guide to Researcher and Knowledge-User Collaboration in Health Research: Canadian Institutes of Health Research (CIHR):  This guide was developed by Participatory Research at McGill University (PRAM) and has been created primarily for researchers. 

Kahnawake Schools Diabetes Prevention Project:  The purpose of the KSDPP Code of Research Ethics is to establish a set of principles and procedures that will guide the partners to achieve the goals and objects of the KSDPP.

Handbook for Participatory Action Research – Planning and Evaluation:  This handbook is an integrated collection of adapted and new tools and processes to engage people and mobilize evidence in complex settings involving multiple stakeholders.

Guidelines for Ethical Research in Indigenous Studies (Australian Institute of Aboriginal and Torres Strait Islander Studies:  These guidelines are to ensure that research with and about Aboriginal and Torres Strait Islander peoples follows a process of meaningful engagement and reciprocity between the researcher and the individuals and/or communities.  

Community Research Ethics Office:  CREO provides education and support regarding community-based research projects, including the Principles of Research Ethics chart.

WORKSHOPS/CURRICULA

Community-Campus Partnerships for Health:  CBPR Curriculum: This is a skill-building curriculum intended to be used as a tool for use by community-institutional partnerships.

Community-based Participatory Research:  Prepared for Artreach Toronto, this workshop series provides facilitators to share their insights and resources.  

Developing and Sustaining CBPR Partnerships: A Skill-Building Curriculum:   This evidence-based curriculum is intended as a tool for community-institutional partnerships that are using or planning to use a CBPR approach to improving health.  Unit 1, Section 13 deals specifically with ethics, including case studies and questions to consider.

Community-Based Participatory Research: A Partnership Approach for Public Health - Barbara Israel et al.:  This course is intended as an introduction to CBPR for people who are in the early stages of using or considering using CBPR and is designed for academic researchers.

Ethical Conduct of Research with Human Participants Training:  The training tool is composed of several key content areas: overview of the concept of ‘ethics,’ historical summary of select ethically flawed human participants research, guidelines of the Belmont Report, and regulations that an IRB must follow when reviewing proposed research. The training includes interactive scenarios to facilitate discussion

FOR COMMUNITIES INTERESTED IN DOING RESEARCH 

Community-Based Participatory Research A Training Manual for Community-Based Researchers:  This training workshop was intended to be the first formal step of an ongoing process of learning and development, to launch and enhance community-based workers’ role as community-based researchers in a community-based participatory action research project

Keeping research on track: a guide for Aboriginal and Torres Strait Islander peoples about health research ethics:  This booklet contains information relevant to Aboriginal and Torres Strait Islander peoples and sets out ground rules for the ethical conduct of health research involving people.

Camp Boot: Community Engaged Research Training Curriculum for Lay Researchers - Linda Highfield et al.:  Camp Boot is designed to teach community residents the principles of community based participatory research.

Guidelines for Community Based Research:  This document was developed over several months via a collaborative process that involved diverse Salt Lake City community members and researchers at the University of Utah. This is a “grass roots” guide for community-researcher collaborations.  

OTHER GENERAL RESOURCES 

Guide for Grassroots and Professional Researchers on Doing Community-Based Participatory Research on Women’s Homelessness:  This guides is based on experiences and recommendations of a group of women experiencing poverty and homelessness.

Women’s College Hospital (Women’s Xchange):  This page provides a number of links to CBPR resources.

Speaking Truth, Creating Power: A Guide to Policy Work for Community-Based Participatory Research Practitioners:  This tool-kit is designed for CBPR institutional and community partners who want to create or change policies that affect health in their communities.

Consumer and Community Participation in Health and Medical Research - Fact Sheet Series - Ann McKenzie et al.:  This fact sheet series contains 22 documents which guide researchers, consumers and community members on the ‘how and why’ of implementing consumer and community participation in health and medical research.

The Learning Place for Community-Based Research in HIV/AIDS guides you through the many facets of community-based research using interactive educational modules.